It's time to spread the word.
I'd like to invite EVERYONE EVERYWHERE to join in and launch as many balloons as possible on Sat. Oct. 3rd. On each balloon you can attach a card, found below, giving facts about CHDs. Visit a dollare store near you and purchase as many balloons as you'd like! Print and attach your cards and launch away!!! (Please feel free to copy and paste, add or delete any information found on the card.) Hopefully this valuable information will provide some awareness of CHDs. Please feel free to tell your friends, family, and carepage families.
Congenital Heart DefectsTell someone you love about Congenital Heart Defects!
~CHD's are the most common birth defect in America~1 in 100 children (40,000 newborns a year) will be born with some type of heart defect
~CHD's are responsible for 1/3 of all birth defect related deaths
~20 percent of children who make it through birth will not survive past their first birthday
~Although a child is born every 15 minutes with a CHD, research continues to be grossly under-funded in America
~Of every dollar the government spends on medical funding, only a fraction of a penny is directed toward congenital heart defect research
~There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them~There is no known prevention or cure for any of them
~More than 50% of all children born with congenital heart defect will require at least one invasive surgery in their lifetime
~The cost for inpatient surgery to repair CHDs exceeds $2.2 billion a year
~CHD is the leading cause of infant death in the US and in every country around the world
Support the Children’s Heart Foundation
Thank you so much for your help in spreading awareness.
9.23.2009
Introduction and Inspiration
Our son was born full term by an emergency c-section after his heartrate dropped during labor. Johnny was quickly brought out in under a min.He was diagnosed at 20 weeks of pregnancy with Heterotaxy, asplenia and several heart defects. He is a beautiful baby who loves to suck on a binky when he's allowed!
He was extubated for the first time at 7 days for about 12 hours. This attempt failed due to low cardiac output syndrome and multisystem organ dysfunction.
Johnny had his first surgery at age 3weeks and 2 days. He had a pulmonary band put on to restrict blood flow to his lungs and help circulation throughout his body. He also had his newborn ductus closed. That was June 12th, the next day he had his second surgery. Johnny needed the band to be a little tighter. He also had a second chest tube and a belly tube put in to reduce the pressure from the excess fluid.
On July 13th, after a month of not enough progress and still intubated living in the hospital, Johnny had his 1st Open Heart surgery. Dr. del Nido repaired the leaky valve, made it into two valves and removed and abnormal growth in his right ventricle. His right ventricle had an immediate response in size... nothing short of a miracle.
On August 5th, Johnny's condition plumeted. He went into heart failure, kidney failure and liver failure. A heart cath was done to determine the cause for this drastic change as well as a liver biopsy. The results of these tests showed Johnny was in end stage liver disease. He was suffering from seizures, had damage to his lungs due to being on the vent for so long, his kidneys were very sick and near failure, his heart was in a good place but the rest of his body had gotten to sick to recover. We said goodbye with our family to our little boy and on August 12, 2009, Johnny Austin King passed away.
He had become an incredible inspiration to so many. His soul and spirit was strong and remains with us. It is for Johnny but also with Johnny that I am moving forward with the battle of CHD's. Spreading the word and raising money. So many suffer from Congenital Heart Defects everyday.... 40,000 newborns each year will be diagnosed with a CHD. It is the number 1 birth defect. Help me spread awareness through this website and through events and activites. If you are doing something for CHD Awareness, post it here. Together we can take a Broken Heart and become a Healed Community.
He was extubated for the first time at 7 days for about 12 hours. This attempt failed due to low cardiac output syndrome and multisystem organ dysfunction.
Johnny had his first surgery at age 3weeks and 2 days. He had a pulmonary band put on to restrict blood flow to his lungs and help circulation throughout his body. He also had his newborn ductus closed. That was June 12th, the next day he had his second surgery. Johnny needed the band to be a little tighter. He also had a second chest tube and a belly tube put in to reduce the pressure from the excess fluid.
On July 13th, after a month of not enough progress and still intubated living in the hospital, Johnny had his 1st Open Heart surgery. Dr. del Nido repaired the leaky valve, made it into two valves and removed and abnormal growth in his right ventricle. His right ventricle had an immediate response in size... nothing short of a miracle.
On August 5th, Johnny's condition plumeted. He went into heart failure, kidney failure and liver failure. A heart cath was done to determine the cause for this drastic change as well as a liver biopsy. The results of these tests showed Johnny was in end stage liver disease. He was suffering from seizures, had damage to his lungs due to being on the vent for so long, his kidneys were very sick and near failure, his heart was in a good place but the rest of his body had gotten to sick to recover. We said goodbye with our family to our little boy and on August 12, 2009, Johnny Austin King passed away.
He had become an incredible inspiration to so many. His soul and spirit was strong and remains with us. It is for Johnny but also with Johnny that I am moving forward with the battle of CHD's. Spreading the word and raising money. So many suffer from Congenital Heart Defects everyday.... 40,000 newborns each year will be diagnosed with a CHD. It is the number 1 birth defect. Help me spread awareness through this website and through events and activites. If you are doing something for CHD Awareness, post it here. Together we can take a Broken Heart and become a Healed Community.
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